Saturday, 30 April 2011 11:34

Those on HD don't have the strength to come for support. The rest don't need support.

Written by  Kamal Shah
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The Hyderabad Kidney Foundation organized a patient support group meeting this evening at NephroPlus' East Marredpally branch. All of two people showed up. One of them was a transplant recipient. The only dialysis patient who came, came at 6 p.m., a full hour behind schedule and I suspect he came to get a missed Erythropoietin shot.

I honestly did not expect to get a huge a crowd. I expected around 10 - 15 people to come. So, I was way off. I probably misjudged the patients.

Here is how a hemodialysis patient probably thinks: "The three times that I need to go to a (expletive) hospital are the three worst times of my (expletive) week. And you want me to come on my day off to a (expletive) hospital!"

So, the patients are probably going to do everything they can to stay away from anything remotely resembling a hospital - let alone a standalone dialysis center! Hemodialysis also drains many of them out so completely that they barely have the energy to do anything. If they actually have energy left, why would they make an effort to go for a boring support group meeting?

We had informed a few PD folks too to come. The sole reason PD folks do PD are that they don't want anything to do with HD. Most PD patients are leading totally normal lives anyway. So they don't really need any support. So, why would they come for the meeting?

Where does that leave the support group initiative? Search me!


Kamal Shah

Kamal Shah

Hello, I'm Kamal from Hyderabad, India. I have been on dialysis for the last 13 years, six of them on PD, the rest on hemo. I have been on daily nocturnal home hemodialysis for the last four and half years. I can do pretty much everything myself. I love to travel and do short weekend trips or longer trips to places which have dialysis centers. Goa in India is a personal favorite. It is a great holiday destination and has two very good dialysis centers.

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