Friday, 09 March 2012 22:03

Ignorance about basic dialysis concepts

Written by  Kamal Shah
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A dialysis patient came to meet me a couple of days back. She has been on dialysis for a couple of years now. She came to ask me about my opinion on Peritoneal Dialysis. Those who've been reading this blog for a bit now probably know my bias towards PD and I explained that dialysis modality is strictly a matter of personal preference and I preferred PD.

We got around to discussing a number of other things. I was appalled at her lack of awareness of basic dialysis concepts. For example, though she probably knew that she must drink less fluid, she had no idea about ultrafiltration that happens during dialysis, why she cramps during sessions and the concepts of fluid weight gain. She had been thinking she must eat less to reduce her weight gain between sessions as advised by the technicians. Poor girl! She was emaciated!

This really goes to show the abysmal level of education being provided by our doctors and medical professionals to dialysis patients. I was bemoaning the lack of options being provided to us. That is much more to ask for than basic education. Better education, I can guarantee will improve compliance.

You, my dear medical professional, have no right to lecture us on fluid weight gain and non-adherence to the renal diet when you don't so much as goddamned care about letting me know what we should know!


Kamal Shah

Kamal Shah

Hello, I'm Kamal from Hyderabad, India. I have been on dialysis for the last 13 years, six of them on PD, the rest on hemo. I have been on daily nocturnal home hemodialysis for the last four and half years. I can do pretty much everything myself. I love to travel and do short weekend trips or longer trips to places which have dialysis centers. Goa in India is a personal favorite. It is a great holiday destination and has two very good dialysis centers.

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